9 Steps to Preventing and Stopping the Meltdowns and Tantrums

When people meet my son, they are often taken aback to learn he has a special need.  We are often complimented on how well behaved he is and how polite.  But, life was not always that way.

When our son was younger, could not speak at age five, and could not communicate to us anything without grunts, hitting, and kicking, we often felt like Annie Sullivan with Helen Keller. 

Helen Keller’s first experience with Anne Sullivan (an ABA therapist if ever I saw one)

One Christmas, when he was younger, I remember walking into a store and my son pulling the most epic of tantrums because he could not get the toy he wanted.  This was literally five minutes into walking into the store.

He threw himself on the floor, kicking, thrashing about, and screaming like a banshee.  Words did not help. 

The stares started.  The condescending looks.  My husband and I were faced with a choice: give in and get him what he wanted so badly or stand our ground.

I am stubborn…we stood our ground.

My son did not expect what I did next.  My husband continued with the shopping trip while I hauled our son (kicking and screaming) back to the car. I then put him in his seat, shut the door, and stood outside in the safety and relative peace and quiet.

My son spent the next 15 minutes kicking, screaming, and hitting everything he could reach, in the safety of the car and seat.  I was there ready to open the door at any moment should he become unsafe, or once he calmed down.  The windows were rolled down a bit (all safety precautions were met).

Once he calmed down (and stopped seeing red), my husband and I were able to talk to him about his behavior and how that was unacceptable.

This was our turning point. This was when I began to dig into every parenting book for strong-willed children I could get my hands on, every podcast, Ted Talk, everything I could find out about our son’s needs, how his brain worked, and how we could help him overcome the challenges he was born with.

Here are the top 9 things we learned about how to prevent and stop meltdowns, tantrums, and mayhem.

1.       Start Small: If your child is anything like mine, then you probably want to tackle everything at once.  Potty training.  Tantrums. Cleaning. Manners.  Unfortunately, we do not learn that way. Pick one to three things you want to focus on.  We chose behavior in a store and classroom and transitions from preferred to non-preferred activities.  

2.       Prep: So often I hear of parents who cave in the market check out line when their child starts a tantrum.  Or parents tell me of how exhausted they are from calls from the school and parent-teacher conferences.  I get it.  We could time the first call from the school to the exact day in the school year (Monday week three).  We once had three parent-teacher conferences in the first week and a half of school.  What we learned, prep.  Prep the child with what is expected of them and what they will earn if they accomplish it. Prep the teachers what is expected of both child and teacher.  Teachers have to be on board.  We had a system where I texted the teacher daily what our son was earning and the expectations.  This was helpful for consistency throughout the day.

3.       Be Consistent: I am a big proponent of this and will say it again.  Consistency is key.  If your child thinks he plays a parent against the other, if she thinks she can get away with something at school and not at home, if a child sees a weakness in defenses anywhere – they will exploit it! Be consistent and work as a team.

4.       Incentivize: I get the most push-back on this.  “I don’t want to bribe my child.”  “I don’t want my child thinking they get a treat just for making choices expected of them.”  “I don’t want to bribe my child.” I get that.  First, an incentive is not a bribe.  A bribe is reactionary – an in the moment choice: “If you stop throwing a fit, then I will get you the candy you are hollering about.”  This teaches the child that enough public humiliation for you as the parent gets them what they want.  An incentive is a contract.  A contract between parent and child of what is expected on both sides.  If you keep your hands in your pocket in the store/if you use please and thank you/if you finish your homework without asking, then you get a balloon/piece of candy/star on your chart.  This is actually a great way to start teaching finances and economy as this is a practice we adults use daily.  Work an hour and I will pay you $10.00, don’t complete the work well, and you are fired. Instead of hourly work, they are doing task work – like an independent contractor.

5.       Diet: Food affects behavior.  Food was not something we originally tracked. I am so glad we did.  By tracking his food, in combination with behavior, we learned that within 24 hours (to the minute) of having dairy, our son would have very negative behavior.  We learned that when he ate a lot of processed food, high sugar foods, his focus decreased and his attitude was negative. We later learned this was because he was having stomach issues (he couldn’t tell us his stomach hurt).  A great cookbook that helped us get started on a healthier diet for him is The Brain Food Cook Book, written by a mom of a special need’s kiddo.  I have to say, some of our favorite recipes are in this book, and the tips on how to do this without breaking the bank and how the brain works is incredible.  Our son’s neurologist concurred and said it was because of his diet and his oxidated stress regime, our son did not need medication for his migraines and other neurological issues.

6.       Medication: If you can avoid it, I personally recommend avoiding medication.  In our experience, when Kennedy Krieger doctors told us they don’t know enough about the need and effect of medication long-term on children, we were very hesitant.  However, the school system we were in at the time, told us without medication they would not teach our child.  The daycare echoed this.  (NOTE: This is not legal, and we should have fought it, but didn’t know at the time we could).  The medication prescribed was only approved in adults with heart conditions.  The bi-product was helping with behavior in children, but no long-term studies had been done.  We later learned (three years on the mediation), that there were studies showing his medication could lead to cancer long term.  They did help.  If that is what you think is best for your child, do what is best for your child. 

7.       Oxidated Stress: This an imbalance of free radicals and antioxidants in the body, which can lead to cell and tissue damage.  This occurs naturally.  There are some peer-reviewed studies showing this affects everything from thyroids (almost 5,000), cancers (nearly 90,000), ADHD (nearly 2,000), and Autism (nearly 3,000). How do you combat this naturally occurring process? Fruits and vegetables are a start.  We also switched to “clean” cleaning products (chemical free), decreased screen time, and increased time outside. We incorporated Protandim into our life.  After a month on this vitamin, our son’s monthly to quarterly ER visits for stomach migraines decreased to none in the past three years, our son’s focus and attention increased (he is 11 reading at a ninth-grade level and taking a college music course), and he has been completely off medication for three years (taken off under the care of his physician).  We get ours from Life Vantage (patented formula).

8.       Track: It is important to only start one behavioral change at a time.  Introducing too many variables at once will not let you know which ones do anything.  We started with diet, then added medication, then dealt with oxidated stress – which eventually got him completely off medication.  Track measurable things – how often the school calls, grades, attention while reading, how long it takes to complete a task. Below are some great resources we used, and use, to help us. I recommend making them editable and laminating them. This reduces waste and allows you modify based on age and behavior. Dry erase markers work great on these.

9.       Celebrate and Recycle: Celebrate the win! Talk with your child about how proud you are of their progress. Celebrate the hard work it took them to accomplish that goal. Then, start the process over on a new behavior or more advanced behavior.  Humans should never stop learning and growing.  This is especially important for children.  When one thing is mastered, move on to the next level or new behavior. 

For more ideas on how to help avoid meltdowns and mayhem, take a look at my Facebook page.

14 Steps to Thriving at an Individualized Education Plan (IEP) Meeting

It is October.  That time of year where days get shorter, nights get longer, and we are all a bit more aware of what goes bump in the night.

October was also the time of year my family would go through the Individualized Education Plan (IEP) process.  It was always a stressful, and sometimes scary part of our month.  As we focus on things that are scary this month in the lives of of our kiddos, we are going to tackle how to be successful at this.

IEPs can either be a Godsend or the worse hour(s) of your life that year.   We have been through both.  High Roads School in Maryland is excellent!  California and Florida, we had some significant struggles.  We have had successes and failures. 

Background: IEP’s are designed to make the learning experience beneficial to all students.  After all, we are different children with different needs.  A team of administrators, teachers, specialists, and parents work collaboratively to help the child succeed academically. When it works, it is a phenomenal process.

Problem:  IEP meetings seldom work collaboratively and, for a parent unaware of the bureaucracy of the district can be very overwhelming and frustrating.

How do we survive these necessary yearly meetings, while ensuring our children thrive? Here is what I have learned having done IEPs in three different states across America.

Track Progress in all aspects of life

1.       Track Progress:  If you have been following me, you know I believe in data collection and how it can be beneficial to us in all areas of our lives.  In regards to behavior, this has been essential to us understanding our son’s behavior and what effects it.  We track his progress socially, behaviorally, and academically.  Journaling, goal setting, progress reports, report cards, all help a parent understand the multiple levels of a child a better.  This is essential to know how to help your child in the school system.

2.       Review progress reports:  It is really easy to lose track of progress reports in the chaos of what comes home (or emailed from school).  But progress reports are a great way to see what your child likes, doesn’t like, struggles with, or excels at.  We need to know where we have been to know where we are going. This is a vital tool for preparing for you IEP. This is also a great way to stay in touch with teachers throughout the year.

3.       Research IEP Goals: Typically, a month to three weeks prior to a scheduled IEP, I research IEP goals.  This is easily done using a Google search of “sample IEP reading goals” or “sample IEP math goals.”  Do this for each subject.  I cut/paste the ones I think my kid will enjoy and have success with.

4.        Be realistic: Select realistic goals.  You cannot set realistic goals without the above steps completed.  More importantly, you need to choose goals that can be accomplished in the timeframe provided, while leaving room to grow.  Have faith in the child to meet expectations and goals.  Children are resilient and can do way more than we think they are capable of.

5.       Prep teachers/communicate early: Teachers are a strong voice in the meeting because they spend a lot of time with the child.  Don’t wait for an IEP to communicate your concerns, joys, and goals.  They will be more likely to advocate for the child if they believe the parents are working on the same team and not against them.  The education team will likely meet a week or two prior to your scheduled meeting.  Give the teacher your views and goals.  This will help incorporate your ideas prior to the meeting scheduled (and save you time in the long run).  I usually explain this in person and then do a follow-up email to the teacher.

6.       Include social goals: This is really easy to forget when you are surrounded by teachers and administrators who want to focus on academics only.  But school is more than just academics.  Social goals are essential to classroom management, lunch, recess, PE, games, turn-taking, and so much more. Include social goals in the IEP and see how much your child grows both academically and as an individual.

7.       Get rough draft: Most districts will send a rough draft of their meeting home in order to streamline the meeting with the parents.  Go through this with a fine-tooth comb.  I used a highlighter system to show what I agreed with and what I did not.  I also tabbed the pages I wanted a further discussion on.  Most IEPs are lengthy, so this made it quick to refer to things for discussion and help ensure the meeting focused on the more important issues.  I also make changes.

8.       Return revised draft with your changes/edits: Return the changes you made in writing to both the teacher and school prior to the scheduled meeting.  This will ensure the school has time to make the needed changes, or prepare for why they disagree.   

9.       Bring any medical information that supports your views: If you have a doctor’s evaluation, therapy notes, and recommendations, etc. bring them with you.  Make sure those evaluations address academic recommendations.  Some districts do not look at medical information when determining goals because they are not academic.  However, almost all those specialists, are qualified to address academic goals and likely know how to help your child the most.

10.   Bring and be an advocate: You know your child the best.  You are their best advocate.  Don’t be afraid to be their advocate.  The school is not always right.  Just because they are professionals, does not make them a professional regarding your child. If you disagree with a plan or part of the plan, you have the legal right as the parent to address that.  If the school does not agree with your plan (which happens a lot), it is ok to take it up to the district level.  If you do not feel you can be an advocate, invite an advocate with you who is willing to step out and address your concerns.  

11.   Take notes: During the meeting, it is essential to take your own notes.  Multiple times things discussed to be included in the IEP were conveniently left out and official meeting minutes did not reflect the discussion.  Keep your own written record of minutes.  This will be essential as the school year goes on.  

12.   Know your rights: Contrary to what most parents think, the school is not the final authority on an IEP.  Parents have significant rights. You can request a meeting whenever you wish.  You can join a meeting via phone/zoom.  You can invite anyone you wish to the meeting.  You have the right to agree or decline the school evaluating your child for services. In some areas, you have the right to a private education paid for by the district. You have the right to request an evaluation for services (due this prior to requesting the service and save yourself a headache). You have the right to ensure the goals and assessments are measurable. You have these rights and more.  Know them and be empowered.

13.   Do everything in writing: All requests for IEP’s and evaluations need to be done in writing.  Any time you have questions, do it in writing.  Any time you disagree with how things are being done, do so in writing.  Email is excellent for date and time stamps.  We also time-stamped and date all mailed and a student brought home correspondence.  This has saved us in multiple instances.   Legally and inter-personally this will help in preventing issues, miscommunication, and problems as the school year continue.

14.   Keep copies of everything: This is essential.  We once had a school who was supposed to do speech therapy with our son pull the page out of his folder in order to state they did not have to provide services.  We luckily had a copy of the signed IEP on hand and were able to inform them of both their breach in contract and the following needed changes in order to avoid further issues.  Every email and mail correspondence needs to be maintained. 

IEP’s do not have to be scary.  They do take time, but ultimately, they can lead to some amazing growth in your child and in your community.

For more ideas on how to help with IEPs, take a look at my Facebook page.