Find Something Worth Dying For

“You can’t trust kids these days.”  “They never do what you ask.”  “Kids always talk back.”  “Kids today don’t know how to follow through.”  “If it doesn’t require a social media post, don’t count on your kid to do it.”

Sound familiar? 

I have worked with youth and their parents for more than 20 years.  I hear the same things time and time again from parents, youth leaders, coaches, and the like.

But, in my experience, kids act this way because of the models they have.  In my experience someone meaningful in their lives is absent (maybe spends 60 hours a week at work or just not there at all).  Someone may be in their life but has broken promise after promise.  That weekend promised to teach them to ride a bike or go see them in the school play comes and goes with an apology only.

Children are taught how to behave by adults in their lives. Great children are taught to be great adults by adults who invest in them. It is that simple. 

I was lucky to be raised by a man who worked long hours during the day and went to school at night.  But, every school play, every graduation, every school assembly growing up, if I asked, Daddy would be there.  

Daddy taught me three significant lessons that have instilled in me the very foundations of who I am and how I raise my little one.  These lessons are at the very core of what it is to be me.  These lessons are what I hope to pass on to all those young kids who come into my life.

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Honor Those Who Came Before You

There is no one in the entire history of the world who accomplished great things on their own.  Gandhi, Martin Luther King, Martha Tereasa all built on pioneers like Martin Luther, Thurgood Marshall, and John Weasley.

Women today have the right to vote, to work in respectable jobs, and to be educated in the United States because of people like Susan B. Anthony and Elizabeth Cady Stanton.

American freedoms, the very foundation, were built on the hard work and determination of James Madison and Thomas Jefferson who tirelessly worked together writing not just the Declaration of Independence, but researching every known government in preparation for the Congressional Congress created our Republic.

Great-great-great Granddad John Adams, though admittedly opposed to the rule of law of the day, represented the British soldiers accused of the Boston Massacre to ensure they received a fair trial successfully negotiated the Treaty of Paris (ending the American Revolutionary War), and went on to be the first American Vice President, Second President and his son became the fourth President. 

These men denied everything, fighting for life and liberty, for a world that NEVER existed before.  In fact, it took over 20 years, war, and near collapse of a nation under the Articles of Confederation from the Declaration of Independence to the signing of the US Constitution and the birth of American freedoms.  Our nation, imperfect as it is, was the first in the world to allow basic human freedoms to the average citizen. 

When I look back at my accomplishments (graduate degrees, excellent job, published, author, award-winning public speaker), I know that those accomplishments are a direct result of those who invested in me.  My parents, my coaches, the amazing adults who poured into me through Youth Focus, Inc. all impacted not only my success, but the trajectory of my life.

Daddy taught me, not only to be aware of this, but to thank and acknowledge those who invested their time, money, and energy into me.  Thank you, Coaches, Mr. & Mrs. S; Mr. and & Mrs. G, Shim, and Brandy, Florence, Carl and Mary Carol, Patty, and most importantly, Mom and Dad. Your efforts have helped create the amazing life I have.  I could not have done this without you.

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               Let Your Yes Be Your Yes and Your No Be Your No

Daddy taught us, no matter what, yes is yes.  Sounds easy.  But in a world where we glorify a social hierarchy that loves self-image, self-entitlement, and immediacy, this is a hard thing to grasp as a kid.

Simply put, if you make a commitment, follow through.  If you said you would help you kid sister learn to ride a bike, but the lead cheerleader invites you to a party, you help your sister.  If you said you would watch your little siblings so Mom and Dad can have a date night once a week, you do that instead of going to the weekly football games.  It means, if you said you were committing to the school play, track team, debate team (pick a team), you follow through with your best the entire season long – especially when it gets hard.

This allows everyone to trust your word – the very basis of integrity.  People will know they can count on you in the big things because you showed up in the small things every day.

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               Find Something Worth Dying For and Go Live For It

The most important lesson Daddy taught me is to “Find something worth dying for, and to live for it.”

That has been Daddy’s motto for as long as I can remember.  And when you think about, it is perfect for finding and understanding your calling.

A key characteristic of leadership is the belief in the cause.  The causes that pass the 24-hour news cycle, are those whose leaders are willing to walk the walk, and lay down their life, if need be.  IF we want to raise excellent leaders, we need to know what their passions are and help teach them how to cultivate them for good.

As our children grow, we often ask them, “What are you going to be when you grow up?” or “What are you going to study in college?”  But these do not get to the root of a person’s passion.  Passion is what will keep one motivated through the dark woods of real life.  Passion is what will change a weak leader to a strong leader.

Instead, let’s ask our children, “What excites you?” or “What gets you fired up?”  “What are some things that you want to change?”  When they tell us, regardless of what we believe about those passions, celebrate them.  Help them cultivate them. Because they will find a way with or without your help. Use the opportunity to help lead and teach them to be the best at whatever they chose.

These questions will start leading our kids to find their passions so that they may LIVE for them. 

This #fathersday week, let us honor those who came before us.  Let us stay true to our word.  Let us find those things worth dying for, and go live for them.  Let us be the beginning of positive change for our children. 

Celebrate Life

Being the middle of seven children, I have seen the gambit in behaviors. Everything from stitches and fights to games of “War” and dances. I have been blessed to always have a sibling on my side when life turns a sour leaf and family around for holidays…and sometimes when I don’t want them.

But, not everyone is as blessed.

Special needs children are one of the largest groups of children in America…and unfortunately, one of the most often forgotten and ostracized. Many hear the words “special needs” or “Autism” or “Down Syndrome” and immediately think “stupid,” “hard,” and “pity.”

They could not be farther from the truth!

Our little bundle of joy was diagnosed with Autism at age three. And, like all parents who hear that, there was some fear and trepidation (a discussion for another time). At the time, and up until he was about five, our kiddo did not speak. There was loud screams, throwing, tantrums and the like because speech communication was not possible. Getting dressed was a chore as he could not put socks on by himself much less zip a zipper to his pants or button his jacket.

Hard? Yes. But, do I need to be pitied? No!

You see when my son first started to say small sentences – PURE JOY! When he started to be able to zip his pants – JUBILATION! When he started to got straight A’s having to be pulled from class on a daily basis for doctor’s appointments – PRIDE would be an understatement. I even told my husband my kid was the smartest because he did what streamlined kids did in half the time!

What living with a special needs kid has taught me is… [Read more…]

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1. Celebrate Life

In our day and age, it is really easy to get down and out. We are inundated with negative thoughts and reality. News broadcasts deliver only negative news and life hits hard when it hits. Seeing the negative is like pouring a cup of coffee – most of us do it without even thinking.

Living with Autism teaches celebration of life. When you can constantly find growth it is easy to be optimistic. When you can see that life is not in a diagnosis but a person it is easy to enjoy the beauty of a hand-painted birdhouse or a freshly made pot of coffee.

Life is about teamwork. And when you have a great team (my husband is a rock star!) the support makes life that much more colorful and brilliant.

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2. Enjoy the Little Things

I will admit there are days when life feels like it will sucker punch me every chance it gets. But who’s life doesn’t do that? Living with special needs does not mean that life is easier or harder than for anyone else. It just means we (those of us who have special needs in our lives) face different challenges.

So, like every other family, we celebrate the little things.

We celebrate cutting a straight line. We celebrate our little one talking and playing WITH a peer. We celebrate the full sentence. We celebrate jokes.

These little celebrations may seem little but they are HUGE accomplishments. And they remind us that we are more than scary words. Doctors do not always know best. Just like with every other kid, our kid is more than the sum of his doctors’ visits and school meetings.

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3. Don’t Sweat the Small Stuff

Prior to special needs, I would sweat the small stuff. Little things like my sister not emptying the lint trap in our family dryer or how much the scale tipped when I stepped on it were heavy weights on my shoulders.

Autism taught me life is more than the small stuff. There are bigger things to worry about in life like family, doctors, and school.

If it is a choice between my son thumb sucking while focusing on homework or throwing a tantrum because he does not want to do homework, guess which one I am ignoring?

If it is a choice between not reading and reading a comic book, guess which one I am telling his teacher he gets to read?

If it is a choice between rocking in his seat and being quiet or jumping out of it screaming, “Pick me! Pick Me!”, guess which one I am telling the teacher to ignore?

There are big battles and small battles and some battles you just don’t fight. Special needs have taught me how to better see the difference.

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4. Don’t Miss Out!

I know many families in the special needs world. Many on the Autism Spectrum. A lot of families think this diagnosis is an end-all to life as a family. Many do not leave the home…ever. Vacation – thing of the past. Trips – never going to happen. Movies – dream on!

When the word “Autism” came into our lives, our son was not talking, not potty-trained, screamed 90% of the time, was very hyperactive and threw tantrums that would make The Hulk look like a mouse. But, we made the choice early on to not let the diagnosis dictate our lives. We made the choice to hold our son to the same standards as any other child and not let his diagnosis be his crutch.

(I know I hit a nerve with some of you just now. I know there is a spectrum and big trips are hard. I know about Regressive Autism. I know first hand about the challenges of tantrums, non-verbals, and the complete difficulty it is to even get childcare for a couple hours of respite. I understand the reason some families choose to stay home. No judgment. It is just not what we chose.)

We chose to take our son out in public to things like museums, theme parks, and, yes, movies.

We did not do this without a plan. We made sure to follow all applicable guidance. But we did discover, that for our kiddo, the exposure helped with social situations, speech, and relationships.

We have a don’t miss out mentality that has served us well.

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5. Make Time

It is easy to forget to set time aside for yourself in a regular run-of-the-mill-under-the-radar kind of life. But add in multiple weekly doctors appointments in different cities on different days, school IEP’s, parent-teacher conferences and regular life of working full-time and it becomes really easy to forget about yourself and your family.

I don’t mean you forget your family. What I mean is that it is easy to forget to spend quality time with them.

We have learned that time apart each day whether in a workout, reading a book or playing a video game (yes, I said it) is essential to sanity!

We have learned that game nights, arts and crafts and reading together unite us beyond diagnosis and beyond the stress of the battle.

We have learned that date night does not always (and usually doesn’t need) a sitter. We enjoy a movie night in front of the fire with a glass of wine. We enjoy reading to each other. We enjoy sitting out in the hot tub and talking about life. None of these cost a lot of money. None of these require a baby sitter. And all are an essential investment in our marriage.

More to Life

So, does special needs mean a life of hard work? Yes! But whose life is not hard? Does it mean my life is different than most? Yes, but who wants a normal life? Does it mean I am to be “pitied?” No! If nothing else, I have been blessed beyond most. I have learned more than most. I have enjoyed life more than most.

Don’t let the diagnosis stop you from loving and living life. Don’t let a diagnosis of others scare you off from participating in their life. Don’t let the social understanding of special needs (which is highly lacking and often a misrepresentation) be your understanding of them. Be open. Be honest. Be willing. Your life will never be the same again.